Sensory Integration Disorder, a.k.a. Sensory Integration Dysfunction (Sensory Processing Disorder), is defined as the inability of the brain to correctly process information brought in by the senses. Miles also deals with receptive aphasia (a language disorder), and ataxia (means he has reduced balance), an odd gait and poor motor skills. Our Miles still does not have a specific diagnosis other than SID, but believe it or not, there is a diagnosis for a non-diagnosis. This is called non-specific development delay or PPD, which is Pervasive Developmental Disorder.We have been told that he may have Anglemen’s Syndrom or Isodicentric Chromosome 15 Syndrome. This is due to some extra DNA he carries on the long arm of the 15th chromosome! Whew, 2 years of doctor’s appointments, hours and hours of reading and research and it all comes down to this little paragraph. The purpose of this blog is not to look back, but to look forward and track the progress of Miles as he learns and grows. Also, this blog helps to keep things real for myself.
Coming very soon to this blog will be my list of lists. They will include the following: “Things to always have in your purse,” “Best restaurants to take your screaming kid who throws food at any table in a five foot radius,” “Best unlikely takeout,” “Necessary books,” “Horrible choices you have to make when realizing you have a child with special needs,” and “The wonderful list of things that are out of your control”. Please feel free to send us lists or add your own comments to our blog.
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