There are times I want to run to a PC and construct a solid blog for Miles. Then, I nix the idea becuase I either can't break away or I'm too close to every moment of his life to feel as though they need to be immortalized any more than they are through my witnessing those small moments. Amidst the frustration of not being able to talk, his tantrums, and the constant hair pulling with his cousin Sophie, I find myslef not wanting to write about any of this stuff anymore. I figure it's too hard and painful to plod forward without small moments. Then, I realize that there is a silver lining and it's the small moments of triumph that fuel Carrie and I to another day. For instance, his homeroom teacher Connie emailed me today and said that he has fallen right back into step following a very long Spring Break. She noted that he hasn't pulled hair or been overtly huggy with other kids. And when I pulled him off the bus today, I heard a group of kids in the back yell 'bye Miles' over and over again. As he beamed with his huge smile, I felt my spine tinge in that comfortable manner because somewhere between the pain and pleasure there is this tiny blog wobblilng along out here in the clogged avenues of cyberspace celebrating our small boy and his journey through this huge existence.
Monday, March 17, 2008
When Miles gets sick, it’s like regressing almost several weeks in a host of different areas. Recently, he missed a stack of school days and was supremely under the weather. The negative to this is the obvious, but with Miles he loses weight, forgets sounds and generally sinks to an odd kind of low. The upshot of sorts is that he calms down enough so that he will sit with you on the couch to watch a bit of kid programming. Or, he’ll just lounge in contemplation as I do the same. It’s the pleasure/pain split with raising a child like Miles. To get some solace, at times, or a bit of respite requires the little guy to get sick and waller that day for days. Now that he’s at full strength and spring break has started, the rest of us are now sick. I’m personally limping along at work, while Carrie takes care of the kids at home. Rest assured, we’ll all be back up and going here in a matter of days trying to remember where we collectively left off as the sick gun zapped us all hard and heavy.
Wednesday, March 5, 2008
Carrie and I had our first 'check-up' meeting with Miles' home room teacher and speech therapist at Grace last week and the results blew us away. They spoke sparkling about Miles and his ability to adapt, learn and grow in an educational environment. All of our fears going into this huge process of transitioning our boy into a school environment were essentially quelched as we listened to his amazing jaunt into pre-school. We were told that he had met a number of IEP goals and that we would work some new one's into his plan before summer school starts. Overall, they love Miles and expressed their joy in having him in their collective world. You know, there are so many little things that pang you throughout the day when you have a child with special needs and many of those pangs can be extinguished by meetings like this. I'm almost at a loss for words when I realize how well he is doing and how far he has come. Onward and foward .. good work, Milo boy.